Thursday, December 22, 2016

let's get some answers

it's the 21st century, for goodness sakes. shouldn't we be able to figure out exactly what's wrong and just fix it? I know I'm not the only one frustrated by the "watching and waiting" that happens so often in healthcare. there's obviously something not right with my little boy, and I'd like to know what it is and how you treat it. now.

Ivan had another bloody stool today - further proof that we have yet to get to the bottom of things.

he was seen by GI again today, and they seemed quite certain that it is some sort of nutritional intolerance that is causing Ivan's symptoms. they felt comfortable recommending that we start feeding Ivan again, this time using hypoallergenic formula. the GI doc said it was up to us and the neonatologist when we felt comfortable starting these feeds.

our neonatologist is not ready to pull the trigger yet and worries that we haven't done enough to find the true source of the bleeding. I have been interested in more aggressively pursuing answers for quite some time and am relieved to have a doctor who feels the same. side note: everyone in the NICU talks about how brilliant this particular doctor is, so he seems like a trustworthy guy to follow!

the next step to finding the answers we all so desperately want is a CT scan. best case scenario: the CT will show us exactly where the bleed is. knowing where the bleed is will give us a better chance of knowing what is causing it, which will give us a better chance of knowing how to treat it. mama is on board with all of that!



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